hrp0092p1-90 | Growth and Syndromes (to include Turner Syndrome) | ESPE2019

Quality of Life in Caregivers of Young Children with Prader-Willi Syndrome

Mao Shujiong , Shen Jian , Yang Lili , Yang Rongwang , Zou Chaochun , Zhao Zhengyan

Objective: This study was to measure quality of life (QOL) of the primary caregivers for young children with Prader-Willi syndrome (PWS).Methods: The children with PWS consisted of 32 children. The QOL of the caregiver for each patient was assessed using the Chinese version of the WHOQOL-BREF, and the Infants-Junior Middle School Students' Social-Life Abilities Scale was used to evaluate the social adaption capacity ...